The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. They also provide online education resources for families facing the challenges of dementia. For more details click the link above or call their 24 hour hotline at 1-800-272-3900.
Alzheimer's Disease Education and Referral (ADEAR) Center
A program of the National Institute on Aging (NIH), this site offers information concerning Alzheimer's disease for health professionals, people living with Alzheimer's disease and their families, and the public. For details, click the link above.
The mission of the Dementia Care Specialist Program is to support people with dementia and their caregivers in order to ensure the highest quality of life possible while living at home. The Dementia Care Specialist provides free information and assistance to adults with memory or cognitive concerns, or who have been given a dementia diagnosis and to family members and friends who are caregivers. To reach the Dementia Care Specialist for Winnebago County, please contact the ADRC at 1-877-886-2372.
Fox Valley Memory Project is a collaborative non-profit organization operating and supporting programs and services that improve the quality of life for those experiencing dementia as well as their family, care partners, and friends. They encourage practices of hospitality and inclusion to foster a dementia-friendly community. Their no-cost Resource Navigators can answer your questions or connect you to other community resources. For more details click the link above or call 920-225-1711.
Lewy Body Dementia Association
Through outreach, education and research, they support those affected by Lewy body dementias, their families and caregivers. They are dedicated to raising awareness and promoting scientific advances. For details, click the link above.
Positive Approach To Care with Teepa Snow
Teepa Snow and the PAC Team share about dementia so that everyone can understand why this is happening and how to support those living with brain change in a more positive and respectful way. This knowledge and skill will change your life Positive Approach® enhances life and relationships of those living with brain change by fostering an inclusive global community. For details, click the link above.
The Association of Frontal Temporal Dementia
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. They work every day to advance- Research: To promote and fund research toward diagnosis, treatment and a cure. Awareness: To stimulate greater public awareness and understanding. Support.: To provide information and support to those directly impacted. Education: To promote and provide education for healthcare professionals. Advocacy: To advocate for research and appropriate, affordable services. For details, click the link above.
UCLA Alzheimer’s and Dementia Care program provides a series of videos to help caregivers understand how to better care for persons with dementia. Videos cover a range of topics such as aggressive language and behaviors, depression, home safety, repetitive questions, wandering, sleep disturbances and more. Free, live-streaming webinars are also available. For details, click the link above.
UW-Oshkosh Dementia Learning Center
This program offers a series of online and classroom-style dementia courses, originally developed for and approved by the Wisconsin Department of Health Services. The curriculum is appropriate for a variety of learners from beginning to advanced levels. For details, click the link above.
The Virtual Dementia Tour (VDT) is an, in-person experience that will increase your understanding and ability to care for your loved one experiencing dementia. This program is offered once a month at Park View Health Care Center and pre-registration is required. The VDT is also offered to larger groups in the community. For details, click the link above or contact the ADRC at 1-877-886-2372. .
Wisconsin Alzheimer’s Institute
The Wisconsin Alzheimer’s Institute (WAI) is committed to helping people living with Alzheimer’s disease or other dementia, their caregivers, and the health professionals working to support them. Their mission is to advance health equity through research, education, clinical care and community engagement for all people impacted by Alzheimer’s disease and related disorders. For details, click the link above.
Trualta.com
Free online training and support is available to caregivers made possible by Wisconsin Family Caregiver Support Alliance, Wisconsin Department of Health Services and GWAAR. To register click the Trualta.com heading above.
- Improve your confidence, reduce stress, and prevent burnout.
- Connect with other caregivers through community chat rooms.
- Access on-demand resources to suit your schedule.
- Suit your learning preference with videos, articles, audios, interactive scenarios in English and Spanish.
- A variety of topics to include:
- Communication strategies
- Behavior management
- Transition from hospital to home
- Personal care
- Activities and recreation
- Your own wellness
- Mobility and fall prevention
- Documents and decision making
- Grief and loss
Meaningful activities
Suggested Books on Dementia
- The 36 Hour Day by Nancy Mace
- My Two Elaines: Learning, Coping, and Surviving as an Alzheimer's Caregiver by Martin J. Schreiber with Cathy Breitenbucher
- Loving Someone Who Has Dementia by Pauline Boss
- Mom's Gone Missing: When a Parents Changing Life Upends Yours by Susan Marshall
- A Lonely Journey by Walter Zerrenner and C.C. Thompson
- A Not So Lonely Journey by C.C. Thompson
- Creative Care: A Revolutionary Approach to Dementia and Elder Care by Anne Basting
- Creating Moments of Joy, Along the Alzheimer’s Journey by Jolene Brackey
- Still Alice by Lisa Genova
- Hope for the Caregiver: Encouraging Words to Strengthen your Spirit by Peter Rosenberger
Contact the ADRC for a free copy!
